Navigating the Education system can be difficult and challenging for all families but specifically for our families with neurodevelopmental disorders, like FASD. The Edmonton and Area Fetal Alcohol Network shared this great webinar out of Australia and New Zealand on how to better navigate these systems. Watch for some strategies and tips.
For more information and resources like this, take a look at our resource page at https://fasdd.koleyat.com/resources/resource-listing/
The Addictions Foundation of Manitoba is offering two evening virtual community forum sessions that explore the latest information from experts in the substance use and addiction field. Issues of stigma, harm reduction, how substances impact the brain will be discussed, along with best practices to provide support for individuals struggling with substance use. These evening sessions are intended for the general public.
TO REGISTER see the links on the poster here!
The University of Calgary would like to hear about how families of children, youth, and adults with FASD are coping during these uncertain times!
Participation in this research study involves an online survey that takes 20-30 minutes to complete. You are eligible if you: 1) are a caregiver (parent or other legal guardian) of an individual with FASD, 2) live in Canada, 3) can read and write in English, and 4) have access to a device with internet connection. What we learn from this study will help us identify the current needs and priorities of families during the pandemic.
This study was approved by the University of Calgary’s Conjoint Faculties Research Ethics Board (REB20-0737). For questions about this study, please contact the study coordinator (enhancelab@ucalgary.ca, 403-441-8473) or the study’s principal investigator, Dr. Carly McMorris (camcmorr@ucalgary.ca, 403-220-5457)
The South Parkland FASD Collaborative has donated books about Fetal Alcohol Spectrum Disorder (FASD) to the Parkland Regional Library and to 25 elementary schools in the region. This donation is part of their 2020 International FASD Awareness Day activity.
The Parkland Regional Library was a recipient of a variety of books for children, adolescents, and adults. The schools each received one children’s book to add to their school library. The hope is that these books will be a resource for those affected by or have an interest in FASD as well as open dialogue and stimulate thinking about the disability in the community at large. In order to make progress on preventing and addressing a challenge like FASD, communities at large need to recognize that when FASD affects one person in our region, it affects us all. The impacts of FASD matter to our whole community, and we need to work together to find solutions.
People with FASD may have an “invisible disability” that can include difficulties with memory and cognition, organization, and sensory overload. However, the brain is always growing and changing, and innovative programs and strategies can help people with FASD manage their challenges with excellent results. For example, when young children with FASD are coached in cognitive skills like self-regulation and memory, and trained in coping with a variety of sensory experiences, their behavior can improve tremendously over time. These books can provide support and ideas on how to better support people with FASD.
Way to go, South Parkland!!
Posted: January 14, 2021 by Shannon Foster
Another GREAT opportunity to have your voice heard!
The Manitoba Advocate for Children and Youth’s (MACY) Youth Engagement Program is conducting a research project on services provided to children who live with disabilities and they are looking for children and youth who may be interested in having their voices heard regarding their experience in receiving disability services. FOR FULL DETAILS Click here!